Time, Siblings, and Autism
5
Autism doesn’t only affect the person with the diagnosis. It touches the entire family—parents, siblings, grandparents, along with others as well. Children who have a sibling with autism, or any diagnosis that falls within the DSM IV, are constantly reminded of their difference.
Typically, when children are growing up, they strive to differentiate themselves from their sibling so they are seen as an individual, and not a unit. For example, if one child excels in sports, the other may strive in the arts. Each child manifests a unique specialty which ensures that they are noticed because it punctuates their character. They are guaranteed a moment in time where they shine in the eyes of their parents.
For parents however, time is something that they seem to never have enough of.
For most of us, eight hours of our day is dedicated to work, eight hours to sleep, two hours to commute, and what remains of “free” time is often spent on our chores. This gives a person only a small amount of time that is theirs—a compact 24 hours on the weekend, and a sprinkle of hours during the week post the exhaustion of work. How does a parent divide their time fairly between children when one of them has a diagnosis that requires a constant amount of focused time to ensure that they make progress? What does that mean for the sibling who doesn’t require as much focused attention?
I have asked the question, “How do you divide your time between your kids?” to parents with one child on the spectrum and one that isn’t. Immediately, they look befuddled, pause, scan their brains for an appropriate answer and then say something like, “ Not that well.” They appear to be slightly pained knowing that their time isn’t spent equally between both children. How can that be expected when they know one is doing fine while the other is obviously not?
Dividing one’s time equally between two children simply isn’t possible for parents when their 40-hour work week is topped off with 40 hours of ABA therapy to help recover their child from autism. The best solution to handle the time dilemma is to plan time for a special weekly enrichment activity that the sibling can look forward to and enjoy with their parents on a one-on-one basis. Ideally, this activity should bring attention to that child’s particular specialty or interest, whether it be sports-related, in the arts, or some other endeavor.
Whether typical or not, all children need to be noticed, appreciated, and given focused attention. While achieving an equal balance of time between a child on the spectrum, and a typically developing child may not be realistic, one can still attend to and satisfy the needs of both by focusing on the quality of one-on-one time spent, and potential for enrichment, and perhaps in the process, create some wonderful memories.

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Ami Browne
July 04, 2011I loved this article. This is a huge issue in our family right now. Honestly, I am feeling like the family needs a professional to help because I (mom) am the only one with a real understanding of the diagnosis to begin with. I am married, we have a 14 yr old who is close to perfect his entire life and a 4 yr old on the spectrum. Clearly, my oldest has suffered, we all have. What do you do thought, intervention needs to come young and quick and there is no room for denial. I am the only one not in it at this point. I refuse to let my family fall apart but it feels like it is today in this hour.
Suzanne Oshinsky
July 08, 2011The fact that you know you need help is good indicator that you wont allow your family to fall apart. You have the strength to admit that you are in need of assistance. Education is key for all members of the family so they understand the situation. You are right, here is no room for denial. WIth knowledge and open discussion everyone is a part of the process and are proactive.
I wish you and your family the best.
Amy
July 09, 2011I only have 1 child currently and we really would like to have another. My husband is not the father of my son and know that the odds that if we had another are slim as my son’s biological father is the one with the spectrum gene. We often discuss if it is fair to my son or the other to bring a new baby to our family. Yet, our family seems to be missing something. Any thoughts?
Suzanne Oshinsky
July 12, 2011I don’t have any children so my response is from someone who has been around a lot of families affected with autism.
The answer is not about fairness. With having multiple children you are providing them a person they will constantly have to negotiate with. This teaches a child a lot of things, for the one who has ASD they are made to work on their social skills constantly and are better for it. They have someone to practice with all the time.
Most of the families I have seen with multiple children where one is on the spectrum is that the neuro-typical sibling seems to be more sensitive and aware of differences and are more empathetic.
One child I asked what they wanted to be when they grow up said, “ABA therapist”. I have also seen families where the neuro-typical child resents their family.
Its not about the fairness in having more children, its about they way in which the family handles the diagnosis. With the same set of circumstances families will react differently. Some will be stronger and better, while others succumb to the weight. It’s the tactic in parenting.
I would ask your heart what you feel your family is missing and how your decision would change your family.
Luv2rocku
July 14, 2011Wow reading all of your comments really has pulled my heart stings. I think having other children was not I’n the cards for us. Odd but true ..my higher power knew what i could Handel any more. I think I’m a good mom of a severally disabled child. He is now almost 30, he has step siblings. They at this point have no contact or interest I’n my son. Nor does his bio father. Zi got tierd of forcing the issue. And let them go. It does have an impact on all family members.as longed they decide to be involved. I have spent my whole life preparing for my exit from this world i know sounds zmorb. Stay with me! . Not openly. But quietly knowing. I am it I’m all my son has. This disability seems to be greater than those who are around it. No matter how good the intentions. They won’t be there. And supported living? I fight every day just to get the most simple task done. Remember I am a a vet. We only had rain man to reference to. Then people just wanted to know what cool tricks my son could
do. We have come a long way baby. But not enough. Those involved who really want to be involved. Will forever be changed. For the better. And those who don’t want to get involved better get ready as they will for sure work with or meet or already know Somone I’n the spectrum.. As sure I am sitting here . Autism is going to be as common as the every day person.the autistic person should be considered every day people. I’m not sure that there are more autistic people or more diagnosis and awareness .I have personal family history that confirms this theory . They have been cast aside or considered wierd. Live totally miserable lives.alone .. Being so misunderstood is horrible. bottom line. Yes everyone is affected. Not infected. Some people refuse to make room for our speacial needs friends and family. They have right to mobility thoughout our community. They are real they are there, they are alive , They are autistic . They are us. Our children, parents cousins , uncles, family members, friends. . Etc.please make room I’n your hearts and your neighborhood. It’s not going away. Thanks for reading my blog. Luv2rocku.